Loved his heart better :)

It started with a doctors visit and Dr Luke noticing a heart murmur. She made us an appointment to have it checked out, no cause for alarm and I was aware that lots of people have heart murmurs. Rylan was a sickly baby, lots of respiratory issues, they even tested him for CF they just did not seem to know what was up with him.

I am trying to remember how old he was, I know Jackson was not born yet so I am guessing Ry was just over a year old? He laid on the tle and I remember he watched Teletubbies on the tv, I have no idea why I remember that stupid detail. The tech did all his measurements etc and then called in the Cardiologist, a cute little Chinese man named Dr Mock Doc Lee......a sweet man.

He and the tech were talking quietly, I did not think anything of it until he started to say that there seemed to be something unusual about Ry's heart! He explained that the muscle around his heart was abnormally thick and showed me the pictures then gave me the term Hypertrophic Cardiomyopathy. He said we would have to come back in 6 months and we would see how fast the thickening was happening and talk more.....I asked if there was some medication that would help and I remember how he looked at me and said that there was no cure for the condition.....a heart transplant would be the only thing to help!!!!!!! From there it is kind of blurry....he went on to tell me that usually the first sign of this condition is death!! and we were fortunate to be aware of what was possibly going on.

We set up an appointment to come back in 6 months, Ry was under no restrictions but I hated not knowing what was going on inside of him! During that 6 months Jackson was born and I remember that because they had a team of people there to take him and make sure that he had no signs of heart issues.....he was fine:)

I was so nervous for that appointment, Ry was not as cooperative as the first time, he did not like all the things they were sticking on him...lol The tech did his thing and went to get Dr Lee. Dr Lee came in and started using the ultrasound himself checking measurements again etc then looked at me and said he could not understand it. He said that Rylan's heart muscle was decreasing, it was thinner than 6 months previous and had he not seen the first set of ultrasound results himself he would have said it had been technician error!

He said he had no explanation, maybe he had had an infection in his heart muscle .....I said it was more like a miracle and he smiled.

We had to go back 6 months later, then a year later when Dr Lee told us he was fine, his heart muscle was back in the "normal" measurements and we did not need to come back....ever!!

The reason for this post is that Q97.5 fm is having their radiothon for Sickkids hospital today, one of the first stories that they had on was a little boy diagnosed with Hypertrophic Cardiomyopathy.....he had a heart transplant at a very young age and has had a very hard life so far, having many close calls, they actually said he died 15 times but they were able to revive him each time!! he is a fighter! Hearing the pain in his moms voice as she talked about their journey was horrible, both Shane and I were listening to the story and honestly I could not help but cry, the tears just came. The kids were eating breakfast and were listening to the story too, we explained why it hit home.

I told Rylan we consider him our miracle boy and he is going to do great things.....he thinks we loved his heart better!!!

Thank you for the miracle, hearing the pain in the voices of all the parents on that radiothon today just tore my heart. It is so true what they say, once you have children, you forever wear your heart on your sleeve. I am so thankful for healthy children, today Rylan does not even use an inhaler!